ME & me: ME Awareness Week 2020

While I talk quite often about having ME/CFS I’ve not dedicated any actual posts to it yet, and people have been asking me for a while to concentrate on some health topics. I promised myself that the next time ME Awareness Week came about Myalgic Encephalomyelitis (ME) also known as Chronic Fatigue Syndrome (CFS).

ME Awareness Week takes place from the 11th – 17th May and during this week I’m going to be talking about the condition, how I was diagnosed and how it affects my life on a daily basis. I’ll also be answering any questions that people may have.

I feel that it’s especially important to talk about ME/CFS this year when a viral pandemic is taking place because there are already a significant amount of people reporting post-viral fatigue. As I’ll be discussing in more detail later this week I developed ME/CFS as a result of a bad case of flu and this is a particularly common way for people to develop the condition. Therefore, I think it’s really important right now to have people talking about ME/CFS so that if anyone finds themself post-COVID19 having to deal with these symptoms they have a place to start. I didn’t, and many other people with ME/CFS didn’t either, and I can’t imagine what it is going to be like post-lockdown as health services worldwide try to get back on their feet.

So this is me doing my part and telling my story. I’ll be including as many references and links to sources as possible, however, I will remind everyone that I am not a medical professional. These are just my personal experiences.

Topics

The topics I’ll be covering during ME Awareness week are:

Tuesday 12th – My Diagnosis:

It took a year and a 1/2 for me to get diagnosed with ME/CFS and it was a scary process. I’m going to talk about what happened, what I was tested for and why it took so long.

Thursday 14th – My Daily Life:

When I was first diagnosed with ME/CFS I had one set of symptoms that were immediately apparent, however, over time I’ve realised just how complex the condition is. It’s a neurological condition that manifests physically and it affects every single day of my life. I’m going to talk about how my life dramatically changed and how I had to relearn to live life again, just in a different way.

Saturday 16th – Getting Through the Bad Days:

I get asked a lot about how I cope with things and how I get through the bad days. With 6 other health conditions which all interact with my ME/CFS I tend to have more bad days than good ones so I’ve got a lot of things that help me through the day. From items that help to communication strategies and mindfulness meditation; this is what works for me and I’m sharing it with you guys. It’s not a foolproof list and some of it may work for you, some might not but it never hurts to try something new.

Over To You

The whole point of this series is to be informative and I’m posting this today to give everyone a chance to drop any questions or suggestions in the comments. If you’d prefer to be anonymous there is an anonymous contact form in the sidebar. No question will be considered silly so please just ask 🙂 I always go by the opinion that if you never ask you’ll never know.

Likewise, if you would prefer to have your question answered in private you’re welcome to DM on twitter or PM on Facebook.

Pin This - For ME Awareness Week 2020 I'm talking about ME & Me. Including my journey to getting an ME/CFS diagnosis, how the condition affects me & how I handle bad days.

Image Credits: Ribbon photoshop custom shape is by DigitalPhenom.

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2 Comments

  1. Hey! Quick suggestion/feedback, and feel free to delete this comment after! It’d be helpful in your posts on this topic to write out the acronym for ME and CFS at least once because this seems like a great resource and explanation even for people who don’t know you/your blog and people who aren’t in the loop aren’t as familiar with those short forms terms.

    1. Author

      You’re completely right hon and I remembered to do just that in my first post about my diagnosis, I’ve just missed it in this one. Thanks for catching it <3

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